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The report published today by Enrico Letta from the Jacques Delors Institute is a welcome effort to remove barriers that prevent the Single Market from delivering its potential.
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The EU Parliament has proposed some positive changes to the pharma package, the EU’s largest reform of pharmaceutical legislation in twenty years, but these are unlikely to go far enough to significantly improve people’s access to medicines.
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EU countries have today agreed they would prefer their governments to take many of the important decisions surrounding access to consumers’ health data.
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A survey across eight European countries shows that consumers are more cautious about sharing their health data than legislation currently under discussion at EU level proposes. The findings underline that EU legislators urgently need to better reflect people’s preferences in the European Health Data Space Regulation which is already under discussion by the EU institutions. This is essential for people to feel confident about sharing their health data to improve healthcare provision and make their data available for research and public health purposes.